About MPGN

Definition on howstuffworks.com: Membranoproliferative glomerulonephritis type I is a kidney disorder that results in disrupted kidney function, caused by inflammation and changes to the microscopic structure of the kidney cells.

Though this blog is intended for writers, about writing and the writing life, intended to be a helping hand, an small inspiration for struggling writers, no matter what their struggling with, I do hope others with MPGN find this blog and that something in it might help, give hope. Something like—there's someone else out there with the disease who is just trying to get along. I haven't found anything like that, though I've tried.

I found little on the internet or anywhere else about MPGN that wasn’t medical reports stuffed with medical jargon I couldn’t understand. Most of it so depressing I didn’t really want to read any of it. There was nothing personal-you know—about how the patient gets by, what medications works for them, how they felt after getting the diagnosis, how they've learned to go on with a positive outlook. Everything was doom and gloom, worst case scenarios.

The disease is rare enough that there really isn’t a set way to treat it, no clinical trials that prove one treatment works over another. They don’t know what works or if anything does. The disease can go away and never return or come back as soon as the patient comes off treatment.

I know I shouldn’t be a Pollyanna, but I don’t want to concentrate on the negative. Maybe, some kind of discussion or info or something will start here. Or not. One can hope and put out a thread, can’t they?